Day 14

CLO/EPO/Probiotics

Today we mixed chicken stock in with milk and he has had 4 oz. of stock today that way...yahoo!

Last night he slept pretty well. To bed at 11 PM, woke up several times at night but only for a minute or two and woke up at 6:15 AM.

But he is miserable today and his skin looks awful. His back is fire engine red and raised welts that have wept all day. So discouraging. I've cried a lot today because I just don't know what to do for him...I want to make it better but so far I have not. Sometimes I don't think I can do this for even one minute longer....but of course I know I can do this but soemtimes I just don't want to. Why can't Micah just have a normal life? He can't even enjoy playing. He is like a 4 month old, just in our arms resting most of the day. I worry about is development. I worry about how scrawny he is...just barely 15 pounds. I wonder when this will be better. I wonder why the Lord is testing us this way. I wonder when he will be better.

I feel like Heavenly Father gave us the reprieve of the past couple days (a few hours together alone just Shane and I and some more rest at night) so we could have energy to do this again for the next long while.

We are tired. Tired of fighting him constanty to keep him from itching, tired of screaming and crying, tired of minimal sleep and tired of not knowing how to fix this.